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Ryan's Story
I feel if I share Ryan's story it might help someone or inspire other Couple's going thru the same experience might make things a little easier.
I had Ryan June 11th 2001 with Hope's of having another child Healthy and having all fingers and toes in tact as most mother's do. My Pregnancy although was not the easiest (being on Bed rest the last three months).
I had Ryan at 8:38pm pm June 11th, I did not see anything unusual at first , he slept alot and I did notice he did not have his normal Bm in the hospital as most Newborn's do, Being what the hospital called a "veteran" mom of now three kids , I was told not to worry and he would deed have a normal Bm. We were discharged from the hospital without Ryan having a bm and a weight loss of around a pound.
That night Ryan did not wake up at all for a bottle or have a wet diaper and minus a bm. I was really concerned by 10am the day after I got home that my 3 day old baby was throwing up Formula and Not Thriving Like I would normally see in most New Born's. I called his Dr. that morning with my concerns and got in right after Lunch, When we got there Ryan Still slept thru the whole exam and the Nurse tried feeding him and threw the formula up , she also noticed his stomach was hard as a rock , she went to get out Dr. and right away got a stomach xray. We were told to go home and we would get a call with the results. When we arrived home we got a call within a hour or so to get Ryan admitted ASAP that he was so Full of Bowel that he need to get Cleaned out as soon as we got him to the hospital. The Dr's had not idea what was going on at this point, we tried Suppositories with no success -actually it made him back up even more with stool and at that point put a NG tube down his nose to relieve the gasses from his Tummy. Andy and me could not imagine what could be going on , After a LONG week in the hospital and a mis diagnosis of Cystic Fibrosis we found out after we arrived at Children's Hospital he had a Birth Defect called Hirshprung's Diesease which means he had a section of Bowel that did not work and the nerve cells that control expelling Bowel does not work, and in turn backs up all the bowel in his Belly no BM, Ryan was born at 7 pounds 1 ounce, and at admission to Children' s he was 6 pounds 5 ounces. VERY SCARY to watch your baby not thrive and lose the necessary weight that he needs to thrive. After a 4 hour surgery to help remove the section of Bowel , he is now a happy Healthy 6 year old, He still needs constant care but he will always be my Miracle Child and still is always exceeding the Dr.'s expectations.
I had Ryan June 11th 2001 with Hope's of having another child Healthy and having all fingers and toes in tact as most mother's do. My Pregnancy although was not the easiest (being on Bed rest the last three months).
I had Ryan at 8:38pm pm June 11th, I did not see anything unusual at first , he slept alot and I did notice he did not have his normal Bm in the hospital as most Newborn's do, Being what the hospital called a "veteran" mom of now three kids , I was told not to worry and he would deed have a normal Bm. We were discharged from the hospital without Ryan having a bm and a weight loss of around a pound.
That night Ryan did not wake up at all for a bottle or have a wet diaper and minus a bm. I was really concerned by 10am the day after I got home that my 3 day old baby was throwing up Formula and Not Thriving Like I would normally see in most New Born's. I called his Dr. that morning with my concerns and got in right after Lunch, When we got there Ryan Still slept thru the whole exam and the Nurse tried feeding him and threw the formula up , she also noticed his stomach was hard as a rock , she went to get out Dr. and right away got a stomach xray. We were told to go home and we would get a call with the results. When we arrived home we got a call within a hour or so to get Ryan admitted ASAP that he was so Full of Bowel that he need to get Cleaned out as soon as we got him to the hospital. The Dr's had not idea what was going on at this point, we tried Suppositories with no success -actually it made him back up even more with stool and at that point put a NG tube down his nose to relieve the gasses from his Tummy. Andy and me could not imagine what could be going on , After a LONG week in the hospital and a mis diagnosis of Cystic Fibrosis we found out after we arrived at Children's Hospital he had a Birth Defect called Hirshprung's Diesease which means he had a section of Bowel that did not work and the nerve cells that control expelling Bowel does not work, and in turn backs up all the bowel in his Belly no BM, Ryan was born at 7 pounds 1 ounce, and at admission to Children' s he was 6 pounds 5 ounces. VERY SCARY to watch your baby not thrive and lose the necessary weight that he needs to thrive. After a 4 hour surgery to help remove the section of Bowel , he is now a happy Healthy 6 year old, He still needs constant care but he will always be my Miracle Child and still is always exceeding the Dr.'s expectations.
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